Me: I'm a small person, mid-thirties, Caucasian female of Irish descent. Textbook profile of "who is the most common person to get MS." While not obese, I could stand to lose about 20 pounds, and I'm working on that.
I also have textbook, bog-standard relapsing-remitting Multiple
Sclerosis. For once in my life I've done something NORMAL. "MS is
normal?" you say. Yes. For me, yes, this is. There are four different
types of MS, ranging from "you'll be dead in a year" to "barring
accident or other injury or illness like cancer, you have a standard
life expectancy for your gender." I
was diagnosed eight years ago in my late twenties. I don't talk much
about my condition, but my neurologist wants me to start keeping a
journal, so here I am.
Medications I take for my MS include Tecifidera (July 2013; formerly BG-12) and several dietary supplements like vitamins and fish oil that I'm supposed to be taking and forget more often
than not. But this blog should change all that.
The blog: Stasis Interrupted.
The name comes from the cheesy CGI movie ALIEN3. I love the ALIEN movies and "stasis interrupted" comes from the computer giving a warning about the cryogenic
hypersleep stasis being interrupted by a fire. That's pretty much what
happened to me. Here I was, going on about my life and business, when a
fire interrupted my stasis.
Stasis can also mean "equilibrium" or "poise." MS is interrupting that, too.
This blog, in case you haven't realized it by now, is about my
unfortunate medical condition and how I cope with living with it. If you're not
familiar with MS, it's a degenerative neurological disorder related to
Alzheimer's and Parkinson's Disease.
I could go into detail about what it is and how it works, but if you're
curious about all that, others have written about it in better ways. Go here and have a look around. This isn't a scientific or technical blog. This is a blog about what it's like living with MS.
Why am I writing this? Because my neurologist says I should. Also, it
will help me have a record of my days, abilities, symptoms and events.
MS affects memory, so it will help keep track of things in that regard.
MS is also degenerative, so what I'm able to do now, I might not be able
to do a year from now. You get it.